The Marfan Foundation
Nonprofits & Activism
We are a nonprofit organization that empowers people living with genetic aortic and vascular conditions to foster optimal quality of life and longevity. We save lives through research and education that enables healthcare providers to offer best-quality treatment. We serve communities impacted by Marfan syndrome, Loeys-Dietz syndrome, Vascular Ehlers-Danlos Syndrome and related conditions. To learn more, visit marfan.org or meet us on social media.